This is my ALS: A Love Story. It’s about my husband, Don.
Don and I were sitting in his parked car one bleak March afternoon in 2002, crying our eyes out and discussing matters no newly engaged couple should ever have to contemplate. You see, earlier that day, I received a diagnosis of ALS in my neurologist’s office and was given three to five years to live. Out of my deep love for him, and after witnessing what my own mother had been through with the disease, I tried to break things off. I wanted to spare him the unending challenges I knew were coming. He wouldn’t have it. His exact words to me were, “Whatever time you have left on this earth, I’m going to spend with you.” We were married that August, and we’ve been together ever since. We are each other’s best friend and source of strength, and we are abundantly blessed.