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Augie’s Quest Research Update

By Champions No Comments

We lost our hero, Augie Nieto, on February 22, 2023. Augie’s Quest lives on as Augie lived. We stay true to his vision, his heart, and his relentless focus on driving breakthroughs in ALS research. We exist to fund the top science to change lives.

We’re proud of our partnership with the ALS Therapy Development Institute, and what the funding from Augie’s Quest has contributed to this past year including:

  • Identifying lifestyle factors through the ALS Research Collaborative that could play a role in the risk of developing ALS or potentially contribute to a slower progression of the disease. This valuable information has the potential to guide future generations in better understanding ways to influence the progression of ALS or even prevent its development. This dataset is made possible through the generous contribution of essential data by nearly 1000 individuals with ALS, and your past support of Augie’s Quest.
    • This de-identified data is shared with researchers around the world to advance the global effort to find effective treatments for ALS.
  • Funding of the Augie’s Quest Translational Research Center that
  • Initiated collaborative studies, using advanced cell biology techniques, to explore two new drug targets– medicine intervention points – in motor neurons from people with ALS grown in the lab.
  • Developed new techniques for growing and studying axons – the long connections between neurons and muscles – in the lab.
    • These long connections break down in ALS. Understanding how they break down and discovering ways to stop that is important for developing effective treatments.
  • Initiated important studies of the how cells from people with ALS handle or mishandled critical RNA molecules.
    • RNA molecules carry the instructions from human genes to the rest of the cell so that the cells can function properly. This is impaired in ALS and will likely need to be repaired. Scientists in the AQ TRC are exploring treatments that might address this dysfunction.

We proudly use the tagline “incurable is unacceptable,” because we can’t stop, we won’t stop, until there are treatments available for everyone with ALS that truly improve their lives and end this horrible disease. 

Augie in Loving Memory

Augie Nieto Dies at Age 65

By Champions One Comment

Fitness Industry Mogul, Founder of Augie’s Quest to Cure ALS & Hero to ALS Families


Orange County, CA  (February 24, 2003) — With deep sadness, Augie’s Quest shares the news that its founder, beloved leader and ALS champion, Augie Nieto, died, surrounded by his family on February 22, 2023, just seven days past his 65th Birthday.

Augie was the fitness industry mogul credited for the success of Lifecycle, Life Fitness and Octane Fitness brands.   In 2005, at the height of his career, he was diagnosed with amyotrophic lateral sclerosis, or ALS, a progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle control.

Shortly after his diagnosis, he and his wife Lynne, co-founded Augie’s Quest, a nonprofit laser focused on raising the funds and awareness needed to advance cutting-edge research and fast-track effective treatments to ultimately cure ALS.   With the fierce tenacity he used to revolutionize the modern-day fitness industry, Augie, expended that same high-energy and business acumen to transform how ALS research is conducted today.

Since 2005, under Augie’s leadership, nearly $200 million has been raised for ALS research. These funds helped to establish the Augie’s Quest Translational Research Center at the ALS Therapy Development Institute (ALS TDI) to better understand the mechanisms of how ALS affects the body and use the knowledge to develop new, more effective treatments for the disease. A crowning achievement, Augie’s Quest funding has led to development of Tegoprubart (formerly AT-1501), one of the most promising ALS treatments in development today and marks the very first time in history a non-profit organization research project has reached this stage of drug development.

As a leader in an industry dedicated to maintaining muscle strength and performance, it is tragic irony that Augie’s disease robbed him of the strength and use of his body.  But, ALS could not take away his fierce competitive nature, determination, drive and love of life, friends and family.  A visionary and true hero to so many ALS families, Augie galvanized the global fitness industry, caproate partners, individual donors, ALS families and friends, to join forces to change the way people live with ALS.

In Augie’s own words: “Please keep me in your hearts…please help continue the progress of Augie’s Quest to Cure ALS. Please help Lynne to carry on the mission – the second finest achievement of my life. Because I will be in your heart, I will get to experience the joy when we discover a cure.”

His life story was chronicled in the award-winning film, AugieTo honor of Augie’s memory, visit Augie’s Quest.    

***updated video of Augie’s Celebration



Our Hero Augie Nieto ♥️ February 15, 1958 – February 22, 2023

By Champions 4 Comments

Augie Nieto was our hero. 
He inspired us, made us laugh, and made us cry. He taught us that when life hands you unspeakable challenges, what really matters is surrounding yourself with people who love you, and a cause you believe in. He was passionate about finding a cure for ALS, and we are proud to be “Augie’s team”.
Augie passed peacefully yesterday surrounded by his beloved wife, Lynne, his family and loved ones.
Augie wrote:
Please keep me in your hearts…please help continue the progress of Augie’s Quest to Cure ALS. Please help Lynne to carry on the mission – the second finest achievement of my life. Because I will be in your heart, I will get to experience the joy when we discover a cure.

Augie was a visionary – an icon in the fitness industry, and a powerful force in the ALS space. He was the Co-Founder and retired CEO of Life Fitness, Chairman and Co-Founder of Augie’s Quest to Cure ALS, and the Chairman of the ALS Therapy Development Institute. He was a beloved husband, father, brother, son, mentor, and friend. Under his leadership, almost $200 million was raised for ALS research. More importantly, Augie was directly responsible for countless advancements and changing the landscape of this horrific disease that ultimately took him just after his 65th birthday.
We were proud to fight with Augie and Lynne to transform the way ALS research is funded, approaching it in unprecedented ways. We will diligently work beside his beloved wife in Augie’s honor and memory to find a cure for ALS.
Augie wrote:
I know that my fight is not over. I have battled ALS for almost 18 years. Physically, ALS has finally taken my body, but my battle to rid the world of this insidious disease will continue.

We love you Augie. We’re with you, Lynne.
Your Augie’s Quest Team
Shannon, Gretchen, Kelly, Angel and Kelsey


Nancy Sallaberry

By Champions One Comment

After a courageous, nearly eight-year battle with ALS, Menlo Park resident Nancy Sallaberry passed peacefully in her home on December 18, 2022. Her devoted husband of 38 years Paul Sallaberry; her three sons Marc, Luc, and Daniel Sallaberry; daughter-in-law Brittany Sallaberry, and grandson Chase, were by her side.

Nancy is survived by her three treasured siblings: brother Ron Williams and his wife Joyce; sister Victoria Evans; and brother Reese Williams and his wife Fran. Nancy also was the beloved sister-in-law of Denise Sallaberry and her husband Peter Wilk, and Jack Sallaberry and his wife Sue, as well as a wonderful aunt to many nieces and nephews.

Nancy was born in Marin County in 1955 to the late Reese and Marge Williams; the family later moved to Saratoga, Calif. where Nancy and her siblings grew up. At Saratoga High School Nancy excelled at five sports, reigned as homecoming queen, and made dear, lifelong friends.  She then attended the University of California, Davis, where she played intercollegiate volleyball and earned a Bachelor of Science degree in Dietetics, complementing her already outstanding culinary skills.  It was at UC-Davis that she met Paul.

Nancy worked for several years in the tech industry at Triad Systems, but she found her true calling as a mother. She was devoted to her three sons and a tireless volunteer in their school and sports programs. Nancy preferred to work behind the scenes, and she was an unsung hero bringing creativity, attention to detail, and 110% effort to any project aimed at enriching an experience for young people in the community.

Nancy also had a lifelong passion for sports and the outdoors. She was a proud and devoted soccer mom, a faithful Giants fan, and a gifted tennis player whose senior doubles team twice reached the USTA’s National Finals. She delighted in fishing and enjoying nature with her boys in Northern California mountain areas such as the Trinity Alps and Hat Creek.

Nancy’s gentle and understanding nature, her deep loyalty, her lively sense of humor, and her sparkling smile were a gift to everyone she knew.  She found so many ways to show love to family and friends, whether with a wonderful meal, a supportive shoulder, the perfect gift, or a wry practical joke.  Not only did Nancy navigate ALS with great dignity, she became a trusted friend and resource to others newly diagnosed with the condition. There is a celebration of Nancy’s life planned for the spring.  The family respectfully requests that anyone interested in honoring Nancy consider a gift to Augie’s Quest, a foundation dedicated to supporting research to cure ALS (



Nancy Sallaberry

Nancy Sallaberry

The Crawford Charity Golf Tournament raises over $226,000 for ALS Research

By Champions, Fundraising Events No Comments

Thanks to the Crawford Family for choosing Augie’s Quest to Cure ALS as the beneficiary of their 2022 golf outing in August. Today, proceeds of $226,295 were granted to fund the Augie’s Quest to Cure ALS Translational Research Center at the ALS Therapy Development institute. 

These funds are part of a larger $5.8 million grant from Augie’s Quest to ALS TDI through 2024 that was established to fund the discovery of new candidate drugs to slow, stop, or even reverse ALS disease progression. It will help to strengthen existing and future research efforts by aiming to dissect mechanisms of clinical ALS, and use the knowledge to develop new, more powerful drug discovery platforms and facilitate more effective drug development for ALS. 

“We’re grateful to the Crawford family for their dedication to funding ALS research,” wrote Augie Nieto, Chairman of Augie’s Quest to Cure ALS. “We know ALS is curable, and the more champions that support our critical mission, the closer we will get to a cure.”

Sponsors from the tournament included the San Francisco Giants, BiRite Foodservice Distributors, Fragomen, Wasserman, the Brandon Crawford Baseball Camp, the Heller Family, the San Francisco 49ers, Pure Storage, Bitwise, Holmes Helping Hands, the Golden State Warriors and Harmony Capital, LLC.  Special thanks to Augie’s Quest to Cure ALS board member Paul Sallaberry and his wife, Nancy, for their sponsorship and involvement in the tournament.  

The highlight of the event was the engagement from those living with ALS.  Thank you to Osiel Mendoza for sharing his story Read it here

ALS won’t stop and neither will Augie’s Quest

Augie’s Quest to Cure ALS
PO Box #9886
Denver, CO 80209

T: 949-506-1007

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