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CKO Kickboxing & Augie’s Quest Join Forces to “Kick Some ALS”

By Champions

New Fundraising Campaign – Including CKO Punchathon — Kicks Off November 1

Los Angeles, November 1, 2019 – CKO Kickboxing members will put on their boxing gloves as part of a new CKO fundraising drive called “Kick Some ALS” to benefit Augie’s Quest to Cure ALS, a nonprofit committed to changing the experience of thousands living with amyotrophic lateral sclerosis (ALS) by fast-tracking effective treatments and an ultimate cure.

The two-week fundraising campaign launches on November 1 and runs through November 15 at CKO Kickboxing locations across the country. During this time period, CKO Kickboxing makes it easy and fun to donate to this important cause. CKO Kickboxing will also host special CKO Punchathons to “Kick some ALS,” a 90-minute, high energy kickboxing workout, with incentives and prizes. One hundred percent of the $25 class fee will benefit Augie’s Quest.

“ALS robs people of everything fitness and exercise provides including strength, muscle fitness, mobility and more,” says Augie Nieto, Co-Founder and Chair of the Board, Augie’s Quest to Cure ALS and fitness industry icon who has lived with an ALS diagnosis for 14 years. “We are incredibly grateful to have CKO Kickboxing as a new national partner, willing to flex its muscle, join with Augie’s Quest and kick some ALS. Together, ALS doesn’t stand a fighting chance.”

Every 90 minutes someone is diagnosed with ALS, a neurodegenerative disease that attacks the very muscles we work so hard to keep strong, flexible and moving. For people with ALS, as the disease progresses, their motor neurons die off, blocking communication between their brain and their muscles. When voluntary muscles begin to shut down, people with ALS lose their ability to walk, speak, and ultimately breathe. Most people with ALS only live 2-5 years after experiencing the first signs of the disease. Currently, there are no known cures or effective treatments for ALS.

But ALS is curable, it’s just underfunded. Today there is new hope like never before. Thanks to support from national corporate partners like CKO Kickboxing, Augie’s Quest to Cure ALS is helping to fast-tracking new treatments and an ultimate cure. Click here to learn more about the Punchathon.

Little Big Town with Augie and Lynne Nieto of Augie's Quest at the 14th annual Tradition of Hope Gala

Award-Winning Little Big Town’s Spectacular Performance is the Highlight of Augie’s Quest to Cure ALS’ 14th Annual Tradition of Hope Gala

By Champions

Event Raises More Than $1.03 Million to End ALS!

Little Big Town with Augie and Lynne Nieto of Augie's Quest at the 14th annual Tradition of Hope Gala

Photo credit BE Studios for Augie’s Quest: The award-winning Little Big Town — Jimi Westbrook, Karen Fairchild, Kimberly Schlapman and Philip Sweet — join alongside actor Jay Mohr and Augie and Lynne Nieto before their performances during the 14th Annual Augie’s Quest to Cure ALS Tradition of Hope Gala at the Montage Hotel in Laguna Beach. The evening’s celebration raised more than $1 million to end ALS, with 500 generous donors and friends coming together to support this urgent cause and honor two special ALS champions and area residents – Larry Green and John Duden (not featured in photo) – with the organization’s signature awards.

LAGUNA BEACH, CA, OCTOBER 11, 2019: The 14th Annual Augie’s Quest to Cure ALS Tradition of Hope Gala at the Montage Hotel, Laguna Beach gathered more than 500 donors, friends, entertainers and businesses to raise the funds and awareness needed to help fast-track effective treatments and an ultimate cure for this devastating disease.

 

Little Big Town rocked the house at the Augie’s Quest 14th Annual Tradition of Hope Gala,” said Augie Nieto, Chief Inspriation Officer and Co-Founder, Augies Quest and Chair of the Board, ALS TDI. “Thanks for joining our Quest to #EndALS and helping us raise more than $1 million tonight!”

 

Additionally, the event was emceed by Actor, Comedian & Best-Selling Author Jay Mohr, whose friend Phil Green (an active member of Augie’s Quest Leadership Council and ALS advocate) is battling the disease. Here, Augie’s Quest also honored two outstanding ALS champions and Orange County residents, presenting Larry Green with its Founders Award, and John Duden with its Courage Award, for their respective personal efforts to help end ALS.

 

“Inspired night with Augie’s Quest to fight ALS,” posted Little Big Town via its Facebook, Twitter and Instagram pages with a photo of the award-winning band prior to their special performance that night. “Thank you, Augie!”

 

ABOUT AUGIE’S QUEST TO CURE ALS

Augie’s Quest to Cure ALS is a nonprofit helmed by local fitness industry titan and Corona Del Mar residents, Augie and Lynne Nieto, who have been taking on this disease for nearly 15 years. Augie was the “Steve Jobs” of the fitness industry, a business icon finding career success building the Life Fitness and Life Cycle brands, ushering in popular work outs and new forms of cardio, and getting the masses to hit the gym. Since their ALS diagnosis, the couple has been on a unique quest, rallying family, friends and the entire fitness industry to fund innovative science, effective treatments and an ultimate cure through their nonprofit, Augie’s Quest to Cure ALS. In collaboration with their research partners at the ALS Therapy Development Institute, they have raised more than $150 million to fund essential research and develop treatments and cures.

Because ALS isn’t an incurable disease; it’s only underfunded. Augie’s Quest tireless work has driven innovative science forward at an accelerated pace–including one of the most promising drug treatments yet and a thriving precision medicine program. The quest for a cure is not yet over, but this incredible community is still fighting to end ALS once and for all. Learn more at www.augiesquest.com.

Orangetheory Fitness Becomes The Largest Single Donor to ALS Research Through Fundraising Collaboration with Augie’s Quest to Cure ALS

By Champions

With more than $10 million raised to date, Orangetheory’s partnership with Augie’s Quest marks the largest and most concerted effort to advance promising ALS treatments today

Here, leaders from Orangetheory, Augie’s Quest and ALS TDI gather together to showcase the science made possible by the #AQUESTFORMORELIFE movement and a record total of more than $10 million raised over the three-year partnership.

BOCA RATON, Fla. – June 18, 2019 — Thousands of Orangetheory® members across the United States and Canada raised $4.5 million during ALS Awareness Month for Augie’s Quest to Cure ALS, an organization fast-tracking effective treatments and an ultimate cure for amyotrophic lateral sclerosis (ALS). This year’s record-breaking results bring Orangetheory’s total giving to more than $10 million over just three years, making it the most successful campaign in Augie’s Quest history.

Orangetheory’s $10 million donation has allowed Augie’s Quest to support innovative research being done by their non-profit biotech partner, the ALS Therapy Development Institute (ALS TDI). The ALS TDI lab in Cambridge, MA is fit with Orangetheory’s signature orange to honor the company’s outstanding commitment to fast-tracking science to find effective treatments and cures for ALS throughout the three-year partnership. The funding has been critical in enabling ALS TDI to discover and develop cure-driven drugs, like the promising AT-1501 that successfully advanced to Phase 1 Human Clinical Trials in late 2018; supporting an innovative Precision Medicine Program that provides both ALS patients and scientists with invaluable, personalized information and complex learnings; and significantly driving more drugs into the development pipeline.

“Orangetheory’s commitment, generosity and passion to end this disease – one that attacks the very muscles Orangetheory works so hard to keep strong and healthy – is unrivaled, truly unmatched,” says Augie Nieto, co-founder of Augie’s Quest to Cure ALS and chair of the ALS Therapy Development Institute. “This successful campaign continues to be instrumental in advancing promising ALS treatments. Hands-down, Orangetheory and its nation of committed franchisees, studio members and communities will make it possible for us to #EndALS.”

“At Orangetheory, we’re passionate about helping people live a longer, more vibrant life, and that includes those living with ALS,” says Orangetheory President David Carney. “We want Orangetheory franchisees, staff and members to feel that they are doing things for those who can’t, and we’re thrilled that the entire Orangetheory community has chosen to embrace Augie’s Quest in such a meaningful, powerful way.”

This year’s campaign ran in more than 1,100 studios across the U.S. and Canada from May 1 to May 15. Orangetheory studios challenged their members and each other to donate at least $1 per splat point earned. A splat point is earned each minute a member spends in the Orange Zone or Red Zone. The Orange Zone is the member’s target training zone of 84% to 91% of their estimated maximum heart rate. In addition to its daily schedule of fitness classes, Orangetheory studios also hosted an Augie-thon, a specialty in-studio donation class, across all U.S. and Canada locations on May 11. This unique 90-minute class drew hundreds of members and non-members together, each making a $25 donation.

About Augie’s Quest to Cure ALS: Augie’s Quest to Cure ALS is a nonprofit committed to changing the experience of people living with ALS by fast-tracking cutting-edge research to advance effective treatments and an ultimate cure. The organization is galvanizing thousands to join this fight, confronting ALS in an entirely new way, and driving innovative research forward, and at an accelerated pace. We are working to bring an exciting treatment, AT-1501, and many others, to market as fast as we can via our research partners at the ALS Therapy Development Institute. Augie’s Quest was founded m

ore than a decade ago by Augie Nieto, the successful fitness industry mogul behind Lifecycle and Life Fitness who was diagnosed with ALS in 2005 and whose life story was recently chronicled in the award-winning film, Augie. With Augie’s Quest, ALS doesn’t stand a fighting chance. Because ALS isn’t incurable, it’s only underfunded. Please join our quest at www.augiesquest.org.

About the Orangetheory® Fitness: Orangetheory® (www.orangetheoryfitness.com) makes it simple to get more life from your workout. One of the world’s fastest-growing franchise companies, Orangetheory has developed a unique approach to fitness that blends a unique trifecta of science, coaching, and technology that work together seamlessly to elevate participants’ heart rates to help burn more calories. Backed by the science of excess post-exercise oxygen consumption (EPOC), Orangetheory workouts incorporate endurance, strength, and power to generate the ‘Orange Effect’ – whereby participants keep burning calories for up to 36 hours after a 60-minute workout. Orangetheory franchisees have opened close to 1,200 studios in 50 U.S. states and 22 countries. The company was ranked #60 in Inc. magazine’s Fastest Growing Private Companies List and listed as #25 on the 2019 Entrepreneur Franchise 500 list. Visit www.otffranchise.com for global franchise opportunities. For more information, follow Orangetheory® Fitness on Instagram at @orangetheory or visit https://www.orangetheoryfitness.com/.

Augie’s Quest Returns to Pacific Northwest in Quest to Cure ALS

By Champions

Annual Cure ALS Golf Classic Unites Local Community to Support Critical ALS Research

Seattle, June 10, 2019 – Augie’s Quest to Cure ALS, a nonprofit committed to changing the experience of thousands living with amyotrophic lateral sclerosis (ALS) by fast-tracking effective treatments and an ultimate cure, is returning to Seattle on Monday, September 9 for its annual Pacific Northwest Cure ALS Golf Classic.

This annual full-day event features a shotgun start golf tournament, on-course games, live auction and celebratory dinner – all supporting innovative ALS research. Chaired by Scott Cameron, Co-Founding Principal of Land Advisors Organization, the event provides a unique opportunity for Seattle’s community, and many local families living with ALS, to unite and support this important cause. The event will also be hosted by local Emmy Award-winning sports broadcaster Angie Mentink.

“We are thrilled to bring Augie’s Quest back to the Pacific Northwest,” commented Cameron. “This disease affects far too many families, and loved ones in our own community, and around the world. Alongside many supportive members of this community, this event will continue to have a massive impact on ALS research. Every dollar we raise directly supports that critical science to #EndALS once and for all.”

Learn more about this special event and register to participate today at give.classy.org/seattlegolfclassic.

“ALS is not incurable; it is only underfunded,” added Augie Nieto, Founder, Augie’s Quest to Cure ALS. “We are deeply appreciative of the passionate community in Seattle, and hope all those who care about ending ALS and who are impacted personally by ALS will join us on September 9 for this special celebration.”

Supporters of the event include Land Advisors Organization, Team Gleason, Builders FirstSource, JR Hayes Corporation, Interior Specialists, Inc., St. George Marine, RTS, Richmond American Foundation, Bob’s Heating & Air Conditioning, Triplehorn Brewing Co., Newland, Avalara and Chicago Title.

With the support of partners around the country, Augie’s Quest has achieved numerous milestones in recent months. The organization recently surpassed total fundraising of more than $65 million in support of ALS research. Augie’s Quest also announced that experimental drug AT-1501 successfully entered Stage 1 Human Clinical Safety Trials late last year.

 

Media Contact:

Kristen Barnfield, CK&D for Augie’s Quest

Kristen@ckd-la.com and C: 312.203.0828

 

About Augie’s Quest to Cure ALS

Augie’s Quest to Cure ALS is a nonprofit committed to changing the experience of people living with ALS by fast-tracking cutting-edge research to advance effective treatments and an ultimate cure. The organization is galvanizing thousands to join this fight, confronting ALS in an entirely new way, and driving innovative research forward, and at an accelerated pace. We are working to bring an exciting treatment, AT-1501, and many others, to market as fast as we can via our research partners at the ALS Therapy Development Institute. Augie’s Quest was founded more than a decade ago by Augie Nieto, the successful fitness industry mogul behind Lifecycle and Life Fitness who was diagnosed with ALS in 2005 and whose life story was recently chronicled in the award-winning film, Augie. With Augie’s Quest, ALS doesn’t stand a fighting chance. Because ALS isn’t incurable, it’s only underfunded. Please join our quest at www.augiesquest.org.

ALS won’t stop and neither will Augie’s Quest

Augie’s Quest to Cure ALS
PO Box #9886
Denver, CO 80209

T: 949-506-1007
E: AQ@augiesquest.org

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