Announcing the Expansion of the ALS Research Collaborative (ARC

Announcing the Expansion of the ALS Research Collaborative (ARC) With the recent approval of the Institutional Review Board (IRB), ARC will be implementing several enhancements that will significantly advance our understanding of ALS.   The ARC expansion includes three key changes: Doubling the Size of the Study – allowing us to gain new insights into ALS by gathering data from a larger and more diverse population. Inclusion of Asymptomatic ALS-Related Gene Carriers – which has the potential to provide us with new insights into processes that delay or accelerate ALS disease onset or progression. Integration of Electronic Health Records (EHRs) – enabling us to fill in information gaps and gain profound insights into the development and progression of ALS Read the full announcement to learn more about these important updates.

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